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Low Grade Fever 
21st-Oct-2008 05:59 pm
Hello Everyone. I have Fibro and/or CFS. I am wondering if any of you have a continuous low grade fever, like 99.5 or higher continuously, on a daily basis? Every single morning and evening, I have one. I can feel my cheeks are flushed and hot and when I take my temperature, it is always above 99.2 but below 100.0. During the rest of the day, my temp does back down to 98.7 and my facial flushing disappears.
Just curious if anyone else has this problem also and if I should be concerned about it. I did mention it to my primary ccare Dr. and she didn't seem too concerned about it and I think relates it to Fibro and/or CFS.
Any help with this is appreciated.
Thanks!
Comments 
21st-Oct-2008 10:13 pm (UTC)
Is this every single day of the month? Or just a week or so out of the month?

It could be hormonal, or maybe your natural temperature just runs a little higher on average. My temperature used to run a little lower than normal (I would regularly have a temperature of about 97)... so it could just be normal for you.
21st-Oct-2008 10:30 pm (UTC)
No, this is just about every day of the month. I am on continuous progesterone so I don't have my menstrual cycle. But, it's weird to be that it goes to normal the middle part of the day, about 98.7, then goes up at night, after 6, and I ALWAYS wake up with a 99.0 or above in the morning (and can feel my face is flushed). It almost feels like a sunburn. I am not sweating at all, just my face gets flushed and temp is higher than normal. Weird...
21st-Oct-2008 10:49 pm (UTC)
A low-grade fever is one of the symptoms of CFS.
21st-Oct-2008 10:57 pm (UTC)
When I first fell ill, I either had a chronic low-grade fever or a low body temp (thyroid and everything were normal).

Over the years, it turned out my case of CFIDS was cyclical. When it hit hard, I'd have a low-grade fever.

My CFIDS is now in remission, thank goodness. I still have fibro, but my body temp only goes haywire (low, not high) when I'm anemic.

21st-Oct-2008 11:08 pm (UTC)
a low grade fever is a symptom of Lupus - do you have any other symptoms?
21st-Oct-2008 11:15 pm (UTC)
sometimes people just naturally have higher temperatures than others.
make sure this is on file at your doctor's or you have a card in your wallet or something in case you end up in the ER and get a low temperature (for you) but they interpret it as normal. it happens =/

your body also naturally fluctuates temperature throughout the day. so it all might be normal/harmless, but i would definitely get a second opinion and ask them how they came to the conclusion that there was nothing to worry about. that tends to make dr.s come up with a better reason if theyre being lazy and making assumption and makes them think about it more and reconsider everything.
21st-Oct-2008 11:16 pm (UTC)
My temperature is consistently low--like 96. 98.6 is a statistical mean and not everyone has a normal body temp of 98.6. 98-99 is likely just your normal temperature.
22nd-Oct-2008 01:29 am (UTC)
I doubt it's my "normal" body temp because I have other symptoms with it like facial flushing and sometimes a headache. My face will actually feel like it's sunburned. So, it is not a normal feeling at all.
22nd-Oct-2008 02:01 am (UTC)
I always have a fever over 99 and it sometimes goes up to 100.5
I also have UCTD but of course the doctors can not say if the fever is from that or the Fibro.
I haven't had a normal temp in over a year now. Not even tylenol makes it go down and this is def not my normal body temperature.
Hang in there :( if you find out what it is, let us know.
22nd-Oct-2008 02:37 am (UTC)
Well...I am actually really starting to look into Lupus and other autoimmune disorders. I have been to a rheumy and had the panel of blood work done to rule out obvious problems, but the more I look into symptoms of Lupus, the more nervous I get.
The symptoms that I get that I really feel are not just the Fibro are:
- Severe chest pain which flares badly at times, mostly around my heart on the left side. I actually was hospitalized both times and they chalked it up to being Fibro. I also experience this pain on a much lesser scale several times a week. It is a sharp pain in my chest, around the heart, that gets worse when taking a deep breath.
- Very frequent severe headaches which usually result in migraines.
- Chronic low grade fever 99.0 and above (my usual "normal" temp was always 97-98.5 or so. A little lower than the standard normal.)
- A reddish rash on my cheeks and nose that gets worse when I am flaring with pain, fatigue and fever. I never had this rash until a couple of years ago. It is very slowly spreading. Almost looks like rosacia but isn't because a dermatologist ruled out rosacia.
- I had a blood clot in my lung 2 years ago. The Dr.s related it to being on the birth control pill, but I noticed that Lupus can increase risk for blood clots. I am on coumadin still because I have to take progesterone for endometriosis reasons.
- I only in the past few years, have developed a HUGE sensitivity to the sun. I want NOTHING to do with it now and avoid it at all costs. I used to be a bathing beauty and loved the sun!!!
- I have noticed my eyes are very dry and burn a little and had to get special contacts with a lot of water in them in order for them to work in my eye.
And I do also get the Fibro-type symptoms that also are the same in Lupus like:
- Severe, chronic fatigue lasting more than a few days or weeks that is not helped even with rest or plenty of sleep.
- Severe joint pain in all of my joints from the knuckles down to my feet.

So, I guess I will go for a second opinion to another rheumy that actually gives a crap as the first one I had wanted to shove me out the door as fast as he could because I didn't have Rheumatoid Arthritis. He basically told me it's Fibro, it's all in my head and that I should go see a psychiatrist as soon as I could. Ha! What a freakin Joke!

Thank you ALL for your help and information.

Good Night


22nd-Oct-2008 02:48 am (UTC)
I also have:

- Very frequent severe headaches which usually result in migraines.
- Chronic low grade fever 99.0 and above (my usual "normal" temp was always 97-98.5 or so. A little lower than the standard normal.)
- A reddish rash on my cheeks and nose that gets worse when I am flaring with pain, fatigue and fever. I never had this rash until a couple of years ago. It is very slowly spreading. Almost looks like rosacia but isn't because a dermatologist ruled out rosacia.
- I only in the past few years, have developed a HUGE sensitivity to the sun. I want NOTHING to do with it now and avoid it at all costs. I used to be a bathing beauty and loved the sun!!!
- I have noticed my eyes are very dry and burn a little and had to get special contacts with a lot of water in them in order for them to work in my eye.
And I do also get the Fibro-type symptoms that also are the same in Lupus like:
- Severe, chronic fatigue lasting more than a few days or weeks that is not helped even with rest or plenty of sleep.
- Severe joint pain in all of my joints from the knuckles down to my feet.

So wow. I understand!

My sed rate was high for someone my age but my ANA was not clear cut for Lupus. That is why my rheumy said it was UCTD or MCTD. He feels like I have an autoimmune disease but is not ready to pinpoint it down.

I took pictures of the rashes I had. Also - I sat down and make a huge list of every symptom I have had in the past few years that was not pin pointed to a certain disease.

I think in general Rheumys are interesting people. LOL. Mine is about 80 and has old school ideas but he does listen to me. He knows I am also bipolar but he doesn't think that it is all in my head although he says that stress can make it worse.

I just replied to your SSDI question.
Also, can I add you to my LJ friends?
22nd-Oct-2008 02:58 am (UTC)
Oh yes! Definitely add me to your friends! I will add u to mine!
I can't believe we have all the same symptoms!!! WIll you send me a picture of your rash? Is it on your face? My email is: kk4389@mac.com
Maybe I can send you a picture of mine. "Not the funnest thing to have to send, but it might look the same!"
Take Care
Kelly
22nd-Oct-2008 03:14 am (UTC)
Check this pictures here. You can see the shiny red part of the rash. I may have some more elsewhere as well.

http://flickr.com/photos/14769625@N06/sets/72157608259955691/
22nd-Oct-2008 01:55 pm (UTC)
How old are you?
You have symptoms of Lupus, Lyme, chostochondritis, and Connective Tissue Disease.
But you have exceedingly similar symptoms to Lupus.
Which I hope you don't have.
Good luck love.
22nd-Oct-2008 01:56 pm (UTC)
I am 30.
22nd-Oct-2008 02:01 pm (UTC)
What area are you from? Perhaps I can recommend someone to you. I've been very lucky with my doctors... the med school here has been taking chronic pain very seriously...
22nd-Oct-2008 04:32 pm (UTC)
South of Boston Massachusetts
22nd-Oct-2008 04:39 pm (UTC)
I have a good friend in that area who suffers from chronic back pain... I'll see if she knows of anyone
22nd-Oct-2008 04:44 pm (UTC)
okay great! thanks! I actually am watching your youtube videos right now! I SOOOO hear what you are saying about EVERYTHING!!
It's So weird too bc I went to college for graphic design too! I didn't continue on any further with it though since a bad experience at the entry level, but just thought it to be a very strange coincidence.
Great to have met you!
22nd-Oct-2008 04:57 pm (UTC)
(psst... the youtube videos were from sxeminority)
22nd-Oct-2008 05:00 pm (UTC)
oh my goodness!!! so sorry!!!! i am SO distracted right now and got ALL MIXED UP!!!!
thanks for bringing me back to reality! LOL!
22nd-Oct-2008 03:02 pm (UTC)
The chest pain you describe seems a lot like mine. Mine is from a chronic costochndritis, which is pretty common in FMS patients and not dangerous (in the sense that is does not damage the organes or bonnes like some rheumatological diseases get). I find that heat and very light shoulder movements to relax the chest area help ease flares. I don't know much about the other symptoms you listed (except the fatigue and joint pain, obviously).
22nd-Oct-2008 03:49 am (UTC)
my temp tends to be a little low, like, 97.3, except for that one week of the month when it sometimes goes up to 99.1.
22nd-Oct-2008 05:32 am (UTC)
Have you ever been tested for Lyme Disease? Properly? Where are you from?
22nd-Oct-2008 01:56 pm (UTC)
No. Never tested. How do they test for it?
22nd-Oct-2008 02:22 pm (UTC)
It is a blood test. However, the CDC guidelines for the normal bloodtest are not sufficient. The only lab to get tested through is IgeneX in California.

I only bring this up because a fever is one of the symptoms. I was diagnosed with CFS and then later found out it was lyme. I am not on a road to recovery after 6 years. I posted my story on youtube if you want to see it: My user name is OneGirlArmy.

Please don't hesitate to ask me any questions!

Also, never feel that you can't explore other options. Don't ever let a doctor tell you "no." Many times CFS is caused by another underlying condition.

Good Luck!
22nd-Oct-2008 04:42 pm (UTC)
They never tested you?! I think you need new doctors, ASAP! Thats one of the first things they should test you for before dxing you with Fibro (fibromyalgia is a diagnosis of elimination... meaning that they've factored out other possible causes). That, Lupus, and Crohn's. Most of these can be done with blood tests, so if you have had blood panels done before, I would check your medical records. I was tested for Lyme and Lupus without my knowledge.
22nd-Oct-2008 04:47 pm (UTC)
Oh my bad...then i probably WAS tested, just was never actually told i was tested for Lyme disease. I have already ordered my lab test result records to be sent to me about a week ago...so I will know for SURE soon!
22nd-Oct-2008 04:56 pm (UTC)
::nods::
Lupus panels should be listed in there too. If you get your records back and don't know what those tests are, I strongly recommend www.nih.gov to look them up.
There are various other tests that can be ordered for Lupus as well, as it sometimes hides from the blood tests if you are not experiencing a flare. If your doctors are insistent that you have fibro, please make sure you are keeping up on them to make sure they have done everything they can for you. You hire them, you pay them, but unfortunately its also up to you to make sure they are doing their job at a quality level.

I only say this because you mentioned you had another rheumy that rushed you out of the office. We all have busy days, but when your doctor seems distracted, make sure you bring them back to YOUR SPECIFIC CASE (and not their list of behind-ons) with pertinent, exact questions.

"I need to know what else can cause this problem and what you have checked me for and how thoroughly" for example. or "Is it possible that I may just have had a false negative?" etc.

Good luck. I will post whatever I find for a Rheumatologist in your area on your personal journal, if thats ok, since it may take a couple days.
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