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Fibromyalgia
I feel like having a moaning, comical post....afterall a problem… 
1st-Sep-2010 11:09 pm
I feel like having a moaning, comical post....afterall a problem shared is a problem halfed and all that jazz, right?

So, c'mon, how are you really feeling today?

My chest hurts like Hell and I put some cutlery in the fridge instead of the sink today. But I remembered my daily meds, which never happens!
Comments 
(Deleted comment)
2nd-Sep-2010 12:00 am (UTC)
I hate when people ask me how I am. And then I instantly feel bad for getting annoyed because it's not like other people know I don't want them to ask me that. *headdesk*

My default answer when I'm feeling bad is now something along the lines of "Well I'm alive, so that's good". Or "I've been better, but I've also been worse".
2nd-Sep-2010 01:14 am (UTC)
i have been saying "I'm ok. ya know, nothing abnormal."
2nd-Sep-2010 08:59 pm (UTC)
I find this a tough question to. I generally say "Hanging in there" if I am doing really bad or say I'm good/okay when I'm not in a flare or doing really poorly.

I get tired of talking about how I feel honestly. I sometimes just want to pretend I don't feel so badly :/ but then sometimes you feel so bad you want to complain :( lol!
1st-Sep-2010 11:06 pm (UTC)
Tired and dealing with an infected sebaceous cyst on my head. I am having to put hot compresses on it, and it's screaming at me. And it's gross :(
1st-Sep-2010 11:13 pm (UTC)
Oh my, I'm sorry. I have one like that, too. It sucks!

Before it ruptured, my doc was going to cut it out. Two days before the appointment... it was all icky. I know it sounds gross, but what I did, & what the doc recommends, is to squeeze the hell out of it to get as much gunk out of it as possible. Find someone you trust that won't totally be grossed out.

Eventually, it will settle down, but it's very likely it will return. My doc said to keep an eye on it, and try to get to him before it ruptures a second time. Then, he can clean it out. If it ruptures, he can't. :P

Blah, blah, blah. So gross. I feel for ya. :( Sorry.
1st-Sep-2010 11:20 pm (UTC)
Well, I've had this thing for 12 years now, and it's never been infected. It was just a little tiny pea size thing that was just there. I was really sick last week with a cold, and I think being so run down made it just go crazy. It was about the size of a half dollar! And about half of my head around it hurt.

It started seeping yesterday, and more last night (slept on it, oops), and now it's getting smaller. I haven't been squeezing it, because I read some horror stories about staph infections from them, and I don't want to make it worse. It's slowly going down, and is about the size of a quarter now.

Thanks for the cyst commiseration ;)
1st-Sep-2010 11:25 pm (UTC)
lol Anytime.

Mine was around for years, too. Then slowly grew, till like you said everything around it hurt. Even showering. :P

You can try dabbing it with alcohol every so often. That should help, too. It did for me. Good luck.
2nd-Sep-2010 04:53 pm (UTC)
I've been putting tea tree oil on it 2-3 times a day, and I think that's really helping bring it down. It's about the size of a nickel now, and not as painful. THANK GOD! Infections are just awful.

Thanks again! I've been whining about it all week to my husband, and I'm sure he's sick of hearing about it.
2nd-Sep-2010 05:05 pm (UTC)
Ooh! I'm glad you've found something that's helping. Wishing you the best!!
(Deleted comment)
1st-Sep-2010 11:10 pm (UTC)
I live in a condo building with underground parking. I had to go up & down the stairs 3x, because I kept forgetting vital things I needed for my outing. Then, after the nice maintenance man moved his ladder out of the way so I could pull out, I proceeded to back out & crunch my tail light on his truck's tail gate. (It's not even my car, and my income is next to nil.) I then stuck money in the free parking meter, not getting any of that back before I realized what I was doing. I walked out of a store without a major & necessary receipt, and it just kept snowballing from there... blah. Then, of course, followed the start of a flare & migraine :P

I'm cranky & thinking about crawling back into bed with a good book & my iPod to stay connected with the outside world.

Sorry to whine at ya. :P Wait... you asked for it, right?! LOL :D
2nd-Sep-2010 12:04 am (UTC)
I've been having bad pain days since Saturday and I would really like them to ease up. They're mostly not full on flairs, just... bad pain days. I've had a fair bit of stress at work this week too and I swear my body's immediate reaction is to panic, and only after I start feeling it do I actually stop to think about things rationally. >_< I've been trying really hard not to take my tramadol since I don't want to go through it too fast, but Since Saturday I've only had one day I didn't take it.

And on top of things, I've been having really crappy weekends lately, so I feel like the only thing I have to look forward to is my Disney World vacation (31 days to go!) but I'm worried about how that's going to go because my pain isn't as under control as it was on my last vacation. [insert scream of frustration here]

Soooo yeah. That's that. XD
2nd-Sep-2010 01:11 am (UTC)
I had an EMG on Monday, and I had a cold yesterday...

and my friend wanted to go to dave and busters to take advantage of 1/2 price games on wednesday. I went because it will probably be ending very soon, as it said "through the summer." We didn't do anything active there at all, just trivia and the sitting at the coin-gambling type machine, but... still.

So, by the time we got home, I was pretty much crying. I totally deserve it though. I took my percocet with dinner, so now it's down to 6 rather than an 11. I try not to take it during the week, but today was definitely a NEED MY PERCOCET day.

Photobucket

Despite the pain, it was an awesome day :)
2nd-Sep-2010 01:21 am (UTC)
I've got a cold from hell, and have been in a flare of some sort or another for 2 months straight. Seems like as soon as one problem goes away a new one pops up. I just want 2 good says in a row... is that too much to ask?
2nd-Sep-2010 01:29 am (UTC)
Two things about me that are salient to this story: I have Chiari Malformation Type I, which means the back of my brain is trying to leak out of the big hole at the bottom of my skull. Also, I have a bit of sleep apnea.

Well, I've been feeling pretty crappy (same kind of dysautonomic thing I had that had me bedridden for 8 months last year: bad weakness, nausea/painful stomach, fluttery heart (like MVP), random weird shooting pains, etc.), so I thought I'd start up the CPAP machine again and see if that'd help. Well, it did help some, but the mask I had didn't work real well, so we replaced it with an over-the-head model. This model has a big metal plate on the back that hooks in at the base of the skull.

Whoops.

Ended up mashing my brains in, basically, after only one night. I did it ten days ago now, and it still hurts like hell! All sorts of other weird things happened to my body, like my hands got so swollen and delicate that I cut my fingers with the dental floss while I was flossing my teeth. Just normally flossing, oy! And random pains, and of course the dysautonomia is off the effing charts again. I had to take 800 mg. of ibuprofen for a few days, which does my stomach no good, then Tylenol (normal dose) for a bit, and now ice packs are helping the most, but my damn head & neck still fucking hurt, and my body is still fucking off balance.

One step forward, two steps back! I'm getting awful tired of the Fibro Mambo, you know? :P

Thanks for asking -- it felt good to get that out!
2nd-Sep-2010 04:37 am (UTC)
Blah, zombie day. Not sure if I'm coming down with a cold, but dear lord the day was bad. Doc's appointment today (got nothing accomplished), and then dragged home. I've been dealing with allergies for 2 weeks.

Brain fog is increasing.

I ache bad from Saturday's activities (historical event thing) and am dealing with insomnia.

fun times, i tell you! (fuckitol)
2nd-Sep-2010 08:17 am (UTC)
Considering that I moved a bunch of stuff out of my motel room, dealt with the stress of finding out the landlord of the new place is a scammer and having to get out of the lease, and moving my stuff back (With help this whole time of course) I think I am doing amazingly well.
2nd-Sep-2010 08:40 am (UTC)
My tummy hurts (I think because of pizza) and I've forgotten my Prozac the last two days so I'm not feeling super happy awesome. I'm also exhausted because I started school for the first time in years today, AND still had to go to work.

I'm going to be exhausted for the next few months while I go to school, but it's getting me out of retail so yay.
2nd-Sep-2010 11:39 am (UTC)
I've had barely any sleep the last week and I'm sore as hell from work but I'm in good spirits.
My trainer suggested icing my back as I've found when it's really bad heat just aggravates it. The ice definitely helps. I get this sharp/intense pain in one spot in particular, I had ice on it for ten minutes and it went from a 10 to a 4 on the pain scale.

2nd-Sep-2010 12:56 pm (UTC)
I was doing pretty good until heat wave hit upstate NY. The humidity sends me into a flare, sending me into my air conditioned room, sending me into headaches from the pressure of the air conditioner, sending me into sleep deprivation, sending me into depression, sending me into a flare.... ya'll get it! On top of it, because its too hot for anything else, I've been on the computer more, making my carpal tunnel bad. BAH!! Luckily, Im in pretty good spirits. I need to make an appointment with my gp to talk about possibly upping my Savella and giving me a pain killer for when I need it.
My spirits are a little higher because I applied for another job I would be perfect for, GLBT Youth Educator. We'll see how my spirits are when I get rejected for yet another job that I am perfectly suited for!
2nd-Sep-2010 02:02 pm (UTC)
My shoulder is grinding at me, I'm so tired I want to cry, I have to be at work until 5:30 tonight, I slept awkward and my neck hurts now, and all my bones are achey. At least it's almost a three day weekend for me!
2nd-Sep-2010 02:51 pm (UTC)
Been dealing with a flare for the past 4 days. Pain, exhaustion, etc., but I'm getting stuff done and trying to ignore most of it. In other words, everything normal! Thank you so much for asking.

Hoping we all have better days coming.
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